Monday, May 10, 2010

So I'm not doing so good :(

The doctor just came in to talk to mom and dad. Pretty much I've been just hanging in there for quite some time now. Everything they try isn't helping. They have me on max doses of all my meds. The main problem is this capillary leak which is making me puffy and keeping any fluid from getting to my kidneys. The have pretty much tried everything but this last thing which is to lower all my other meds and give me Methylene Blue.

This med has been used for years to dye your pee blue so they can watch it's path through kidneys etc. It has also shown to temporarly and sometimes permently stop capilary leaks as it a vaso vasoconstrictor.

Mom is getting to hold me for a bit before they try this as it can cause me to become unstable etc. I'm really trying to get better but right now it's not looking so good. But I'm not giving up yet!!!!!!